Support
- Links - Support
Groups
MD
Forum The MD Forum is a point of contact for people who have muscular
dystrophy, and their family and friends. The site provides the latest
news, and forums where people can write about the issues that matter
to them.
Becker
United Support Group The
UK based support group for people who have Becker Muscular Dystrophy
and their families
The
Duchenne Family Support Group
Action
Duchenne (Formerly PPUK)
US
based Duchenne Parent Project
CMTNet
- Charcot Marie Tooth support group
CMT
International UK site
Centronuclear
and Myotublar Myopathy Information Point (UK)
X-Linked
Myotubular Myopathy Resource Group
Association
for Glycogen Storage Disease
The
FSH Support Group
The
(US based) Families of SMA group
Dermatomyositis
and Polymyositis Support Group
The
Jennifer Trust for Spinal Muscular Atrophy
Myotonic
Dystrophy Support Group
Myasthenia
Gravis Association
Myositis
Support Group
Pompe's
Disease
Guillain-Barre
syndrome support group
OPMD
: Oculopharyngeal Muscular Dystrophy
SBMA
This group covers spinal bulbar muscular atrophy also known as
Kennedy's Disease.
National
and International MD Organisations
Muscular
Dystrophy Campaign
MD
Association of Australia
Muscular
Dystrophy Ireland
MD
Association of the USA
Muscular
Dystrophy Family Foundation
MD
Association of Canada
European
Neuro Muscular Centre (the ENMC)
European
Alliance of Muscular Dystrophy Associations (EAMDA)
Muscular
Dystrophy Association of New Zealand
The
above sources are independent of the NeuroMuscular Centre. They are
reputable sites but we cannot vouch for the accuracy or suitability
of information you may find on them, or on sites linked to them. Information
may concern prognoses and must be treated with sensitivity. Be VERY
wary of any site that offers treatment or cure for any form of MD...always
ask for independent, professional medical advice before you contact
a site of this type. If you are not medically qualified and find an
item that worries you then we urge you to discuss it with your doctor
